http://www.donnarothert.com pregnancy loss resources

Resources:
Pregnancy Loss

Finding Information and Help with Pregnancy Loss Issues

Although pregnancy loss is not a disorder, for many people the experience of a loss through miscarriage, stillbirth or other neonatal loss is an incredibly painful and bewildering event. Reactions to such a loss may include sadness/despair, shock, anxiety, anger, confusion, difficulty eating, difficulty sleeping or social isolation.

Because of our culture's discomfort with pregnancy loss, individuals who have had these experiences often feel that their experience is unacknowledged and that their feelings are unacceptable. This can lead to an increase in the intensity and length of a person's symptoms of grief.

Many of us, regardless of age, family role or background, may not have models for understanding or coping with this type of experience. For that reason, I include resources for a variety of people and needs including men, couples and children, as well as information on how family and friends can be helpful after a pregnancy loss. I also include information about infertility due to the frequent dual experience of infertility and pregnancy loss.

In addition to books and websites, individuals in the San Francisco Bay Area have a number of options for support and therapy groups focused on pregnancy loss. If you don't see a group close to you in my listing, you may want to contact your local hospitals or the national SHARE office (listed under organizations) to find the closest group near you.

Depending on your circumstances, individual, couples or group therapy may be helpful to you following a pregnancy loss. All of these options for help are available.

Information and Coping - Books

A Silent Sorrow: Pregnancy Loss: Guidance and Support for You and Your Family, 2nd Edition by Ingrid Kohn, MSW and Perry-Lynn Moffit
Routledge, 2000

Empty Arms: Coping with Miscarriage, Stillbirth and Infant Death by Sherokee Ilse
Wintergreen Press, 1996

Empty Cradle, Broken Heart: Surviving the Death of Your Baby by Deborah L. Davis
Fulcrum Publishing, 1996

Unspeakable Losses: Healing from Miscarriage, Abortion and Other Pregnancy Loss by Kim Kluger-Bell
HarperCollins, 2000

When Hello Means Goodbye: A Guide for Parents Whose Child Dies Before Birth, at Birth, or Shortly After Birth by Pat Schwiebert, RN and Paul Kirk, MD
Perinatal Loss, 1998

Organizations & Web Sites

A Place to Remember - www.aplacetoremember.com

The Hygeia Foundation - hygeia.org/wieselfront.htm

SHARE Pregnancy & Infant Loss Support, Inc. - www.nationalshareoffice.com

MISS (Mothers in Sympathy and Support) - www.misschildren.org

Wisconsin Stillbirth Studies Program - www.wisc.edu/wissp

	Donna Rothert Ph.D. 5313 College Ave. Oakland, California 94618 (510)273-9548
e-mail: dr.rothert@donnarothert.com

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Click link to jump to the pregnancy loss resource categories listed below. Information & Coping - Books Organizations & Web Sites Groups - East Bay Area Groups - San Francisco Genetics Information & Ending a Pregnancy - Books Sudden Infant Death Syndrome - Web Sites Infertility - Books Infertility-Organization & Website Losses in Multiple Births - Organization Men - Books Couples Children - Books Grandparents - Book Grandparents - Organization Single Parents - Book Friends and Family- How to Help Subsequent Pregnancy-Books Subsequent Pregnancy - Web Site Other	Resources: Pregnancy Loss Finding Information and Help with Pregnancy Loss Issues Although pregnancy loss is not a disorder, for many people the experience of a loss through miscarriage, stillbirth or other neonatal loss is an incredibly painful and bewildering event. Reactions to such a loss may include sadness/despair, shock, anxiety, anger, confusion, difficulty eating, difficulty sleeping or social isolation. Because of our culture's discomfort with pregnancy loss, individuals who have had these experiences often feel that their experience is unacknowledged and that their feelings are unacceptable. This can lead to an increase in the intensity and length of a person's symptoms of grief. Many of us, regardless of age, family role or background, may not have models for understanding or coping with this type of experience. For that reason, I include resources for a variety of people and needs including men, couples and children, as well as information on how family and friends can be helpful after a pregnancy loss. I also include information about infertility due to the frequent dual experience of infertility and pregnancy loss. In addition to books and websites, individuals in the San Francisco Bay Area have a number of options for support and therapy groups focused on pregnancy loss. If you don't see a group close to you in my listing, you may want to contact your local hospitals or the national SHARE office (listed under organizations) to find the closest group near you. Depending on your circumstances, individual, couples or group therapy may be helpful to you following a pregnancy loss. All of these options for help are available. Information and Coping - Books A Silent Sorrow: Pregnancy Loss: Guidance and Support for You and Your Family, 2nd Edition by Ingrid Kohn, MSW and Perry-Lynn Moffit Routledge, 2000 Empty Arms: Coping with Miscarriage, Stillbirth and Infant Death by Sherokee Ilse Wintergreen Press, 1996 Empty Cradle, Broken Heart: Surviving the Death of Your Baby by Deborah L. Davis Fulcrum Publishing, 1996 Unspeakable Losses: Healing from Miscarriage, Abortion and Other Pregnancy Loss by Kim Kluger-Bell HarperCollins, 2000 When Hello Means Goodbye: A Guide for Parents Whose Child Dies Before Birth, at Birth, or Shortly After Birth by Pat Schwiebert, RN and Paul Kirk, MD Perinatal Loss, 1998 Organizations & Web Sites A Place to Remember - www.aplacetoremember.com The Hygeia Foundation - hygeia.org/wieselfront.htm SHARE Pregnancy & Infant Loss Support, Inc. - www.nationalshareoffice.com MISS (Mothers in Sympathy and Support) - www.misschildren.org Wisconsin Stillbirth Studies Program - www.wisc.edu/wissp Back to Resources List Groups - East Bay Area Women's Pregnancy Loss Group- Weekly therapy group for women who have experienced any type of pregnancy loss. North Oakland. (510) 273-9548 Miscarriage Support Group- Monthly support group for women who have experienced a miscarriage. Walnut Creek (925) 941-7908. SAND (Support After Neonatal Death) Twice a month drop-in support group for anyone who has experienced a perinatal loss from early miscarriage to soon after delivery. Berkeley (510) 204-1571 "Beyond Choice"- Twice a month support group for those who have had a termination due to genetic abnormalities. North Oakland (510) 845-4656 Groups- San Francisco San Francisco SAND (Support After Neonatal Death) Twice a month drop-in support group for anyone who has experienced a perinatal loss from early miscarriage to soon after deliver. CPMC campus. (415) 282-7330 Grupo Amparo - Spanish speaking support group for people dealing with pregnancy loss or neonatal death. Twice a month drop-in group. Cesar Chavez St. (415) 764-0211 Back to Resources List Genetics Information & Ending a Pregnancy - Books A Time to Decide, A Time to Heal by Molly Minnick, MSW, Kathleen Delp, ACSW and Mary Ciotti, MD Pineapple Press, 2000 A Silent Sorrow Pregnancy Loss: Guidance and Support for You and Your Family by Ingrid Kohn, MSW and Perry-Lynn Moffitt Routledge, 2000 Ch.8 "Prenatal Diagnosis and the Burden of Choice" Empty Cradle, Broken Heart: Surviving the Death of Your Baby by Deborah L. Davis Fulcrum Publishing, 1996 Ch. 8 "Making Peace with Agonizing Decisions" Unspeakable Losses: Healing from Miscarriage, Abortion, and Other Pregnancy Loss by Kim Kluger-Bell HarperCollins, 2000 Ch. 4 "The Dilemma of Choice: Abortion--Elective, Genetic and Multifetal Reductions"* Group- "Beyond Choice"- Twice a month support group for those who have had a termination due to genetic abnormalities. North Oakland (510) 845-4656 Back to Resources List Sudden Infant Death Syndrome - Web Sites American SIDS Institute www.sids.org National SIDS Resource Center www.sidscenter.org Back to Resources List Infertility - Books Unsung Lullabies: Understanding and Coping with Infertility by Janet jaffe, David Diamond and Martha DiamondSt.Martin's Griffin, 2005 Mommies, Daddies, Donors, Surrogates: Answering Tough Questions and Building Strong Families by Diane Ehrensaft, MDGuilford Press, 2005 Miscarriage After Infertility: A Woman's Guide to Coping by Margaret Comerford Freda, RN and Carrie F. Semelsberger Fairview Press, 2003 A Silent Sorrow: Pregnancy Loss: Guidance and Support for You and Your Family by Ingrid Kohn, MSW and Perry-Lynn Moffitt Routledge, 2000 Ch. 15 "Pregnancy Loss and Infertility: A Twofold Sorrow" Back to Resources List* Infertility-Organization and Website Resolve: The National Infertility Association - www.resolve.org Back to Resources List Losses in Multiple Births - Organization CLIMB (Center for Loss in Multiple Birth) www.climb-support.org Back to Resources List Men - Books Miscarriage: A Man's Book by Rick Wheat Centering Corporation, 1995 A Silent Sorrow: Pregnancy Loss: Guidance and Support for You and Your Family by Ingrid Kohn, MSW and Perry-Lynn Moffitt Routledge, 2000 Ch. 3 "The Father's Experience" Empty Cradle, Broken Heart: Surviving the Death of Your Baby by Deborah L. Davis, Fulcrum Publishing, 1996 Ch. 9 "Especially for Fathers" Unspeakable Losses: Healing from Miscarriage, Abortion and Other Pregnancy Loss by Kim Kluger-Bell HarperCollins, 2000 Ch. 5 "Lost Fathers: Men's Experience of Pregnancy Loss and Abortion" Back to Resources List* Couples Healing Together: For Couples Grieving the Death of Their Baby by Marcie Lister and Sandra Lovell Centering Corporation, 2004 For Better or Worse: A Handbook for Couples Whose Child Has Died by Maribeth Wilder Doerr Centering Corporation, 2004 Empty Cradle, Broken Heart: Surviving the Death of Your Baby by Deborah L. Davis, Fulcrum Publishing, 1996 Ch. 10 "You and Your Partner" A Silent Sorrow: Pregnancy Loss: Guidance and Support for You and Your Family, 2nd Edition by Ingrid Kohn, MSW and Perry-Lynn Moffit, Routledge, 2000 Ch. 4 "Pregnancy Loss and Your Relationship: Grieving Together and Apart" Back to Resources List Children - Books No New Baby by Marilyn Gryte Centering Corporation, 1999 35 Ways to Help a Grieving Child by The Dougy Center for Grieving Children and Families The Dougy Center, 2004 Thumpy's Story: A Story of Love and Grief Shared by Thumpy, the Bunny by Nancy C. Dodge Share Pregnancy & Infant Loss Support, 1986 Back to Resources List Grandparents - Book For Bereaved Grandparents, by Marilyn H. Gerner Centering Corporation, 1990 Back to Resources List Grandparents - Organization AGAST (Alliance of Grandparents, A Support in Tragedy) www.agast.org Back to Resources List Single Parents - Book Single Parent Grief by Sherokee Ilse A Place to Remember, 2003 Back to Resources List Friends and Family- How to Help Empty Arms: Coping with Miscarriage, Stillbirth and Infant Death by Sherokee Ilse Wintergreen Press, 1996 - pp. 68-70 Back to Resources List* Subsequent Pregnancy-Books Pregnancy After a Loss: A Guide to Pregnancy After a Miscarriage, Stillbirth, or Infant Death by Carol Cirulli Lanham Berkeley Publishing, 1999 Still to Be Born: A Guide for Bereaved Parents Who Are Making Decisions About Their Future by Pat Schwiebert, RN and Paul Kirk, MD Perinatal Loss, 1986 Trying Again: A Guide to Pregnancy After Miscarriage, Stillbirth and Infant Loss by Ann Douglas and John R. Sussman, MD Taylor Trade Publishing, 2000 Back to Resources List Subsequent Pregnancy - Web Site SPALS (Subsequent Pregnancy After a Loss Support) www.spals.com Back to Resources List Other Study of Maternal Observations & Memories of Stillbirth www.momstudy.com Science, Treatments and Decision-Making Regarding Miscarriage-Book Coming to Term: Uncovering the Truth About Miscarriage by Jon Cohen Houghton Mifflin Company, 2005 Anthropological Examination of Pregnancy Loss in the U.S.-Book Motherhood Lost: A Feminist Account of Pregnancy Loss in America by Linda L. Layne Routledge, 2003 Perinatal Bereavement Resources- A Catalogue for Brochures, Books, etc. www.nationalshareoffice.com or (800)821-6819 Pregnancy Loss Awareness Month is October National Perinatal Bereavement conference www.perinatalbereavementconference.org * indicates that source is listed in more than one subject area Top of Page
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